I Almost Died of a Blood Clot at Age 38

Updated: Jun. 30, 2022

An undiagnosed genetic mutation combined with birth control pills created the perfect storm for a limb-threatening deep vein thrombosis (DVT).

Jill portraitCourtesy Jill Schildhouse


Three years ago while I was at work, I was hit suddenly by a blinding pain exploding in my groin. One minute I was on an afternoon conference call in my cubicle, and the next I shot up from my desk, hung up the phone mid-sentence, grabbed my purse, and hobbled out to my car. The pain was now shooting down my left leg. In fear and disbelief, I wondered how on earth I’d managed to injure myself while sitting at my desk.

During the excruciating drive home, I convinced myself that I just needed to lie down on the couch and rest. But by the time I pulled into my garage, the pain was too severe to put any weight on my leg. So, I crawled into my house and telephoned my neighbor, begging her to drive me to the ER.

When I finally got in, the staff ran tests along with a CT scan of my lower back (the staff assumed that was the source of my pain). When they couldn’t find anything, they pumped me full of morphine and recommended I get an MRI the next day. It was midnight at this point and I called a cab to take me home. Despite the morphine, I spent the rest of the evening suffering. Although some sources of leg pain only require rest, you shouldn’t ignore the pain because of these serious possible causes.


The next morning, I went to see my primary care physician. After a cursory exam, the staff made an appointment for me to have an MRI of my lower back. I felt like the morphine was making me nauseated, so I had stopped taking it; the pain was excruciating.

The MRI results suggested a bulging disc in my lower spine, which seemed strange, as I’d had no previous problems with my back. Feeling as though there was no solution in sight, I booked an appointment with a physical therapy center for the next day to see if there were any stretches that could help.

swollen legsCourtesy Jill Schildhouse


When I woke up, I realized my left leg was incredibly swollen, felt hot, and the skin had a purplish-red hue. I needed crutches to get around, but I made my way into the PT center. The therapist took one look at my leg and said: “You have a blood clot! You need to go to the hospital immediately!

So I called my primary care physician again, and he told me to come right into the office. The next thing I knew, the ultrasound tech and my physician were barking orders at nurses and telling me to stay calm. It turned out that I had a massive deep vein thrombosis (DVT, or blood clot) and they were calling the hospital to book a room and admit me.

At the hospital, I was taken to a private room, where a doctor explained that a specialist would be by to assess me in the morning. I laid in the hospital bed all night, Googling my diagnosis, and wondering why there wasn’t more of a sense of urgency surrounding my situation.

swollen footCourtesy Jill Schildhouse

Thursday to Saturday

Around 9 a.m., hospital staff performed their own ultrasound on me. There was a noticeable shift in mood in the room, and suddenly more doctors and nurses were coming in. Somebody explained to me that the blood clot was enormous—stretching from my groin to my calf and that I’d be going into surgery immediately. I heard doctors murmuring the words “limb-threatening” and I really began panicking. Could I lose my leg over this? Yes, a doctor told me, but at this moment they were more focused on saving my life!

Thankfully, the procedure was successful. I had to spend the next three days in the ICU and underwent two more procedures: One to place a device to stop blood clots from traveling to my lungs; the second was an angioplasty to further open the vein.

jill in hospitalCourtesy Jill Schildhouse


Finally, I was moved out of ICU and returned to a regular room. I was given a walker, surgical-grade compression socks to wear every waking moment of my life for the next two years—in an attempt to prevent pain, discomfort, and swelling. I was told to fill my prescription for blood thinners immediately. My head was spinning: Why did this happen to me?

A week later

I met with a hematologist, and he explained that my blood work revealed a blood clotting condition called factor V Leiden—an inherited mutation of one of the clotting factors in the blood, which can increase the chance of developing abnormal blood clots, most commonly in the legs or lungs.

Women who carry the factor V Leiden mutation may develop blood clots during pregnancy. I’ve never had children, but taking the hormone estrogen also raises risk—and I had been on estrogen-containing birth control pills for nearly 20 years. I’d unknowingly created the perfect storm.

Between 3 and 8 percent of Caucasians in the United States and Europe carry a copy of the factor V Leiden mutation. People who have inherited factor V Leiden from only one parent have a 5 percent chance of developing an abnormal blood clot by age 65.

In my case, it was my mom who had unknowingly passed this gene down to me; to this day, thankfully, she has never had a complication.

The factor V Leiden mutation does not itself cause any symptoms—the first indication that you have the disorder may be the development of an abnormal blood clot. If you experience pain, swelling, redness or warmth, most commonly in your legs, you may have a DVT and should seek immediate medical attention.


In the three years since my blood clot, I’ve had to find alternative birth control and deal with the reality that I will be on daily blood thinners for the rest of my life. My left leg no longer matches my right—it’s still swollen from my thigh down to my ankle (a result of permanent vascular damage) and slightly discolored. But other than aesthetics and having to say goodbye to my entire shoe collection (my left foot is now half a size bigger and I can’t wrap any strappy styles around my cankle), I’m grateful that my leg is functional and still attached to my body. Next, learn the 6 things you can do to prevent a deadly blood clot in your leg.